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Mesothelioma

Support Resources

These Web sites can help you connect with others through discussion lists, message boards, online answers to questions and one-on-one matching with trained volunteers.

Family's Encounter with Mesothelioma Published

A Must Read for Mesothelioma Families and for those affected by cancer of any kind, Mesothelioma victims / families can purchase a copy.

mesothelioma bookLean on Me: Cancer Through a CarerÆs Eyes by Lorraine Kember, is a powerfully moving and inspirational true story of a courageous manÆs battle with mesothelioma cancer and his wifeÆs emotional journey as she supports him throughout his ordeal.

Interspersed with diary excerpts and poems she wrote along the way, this very personal account depicts the depth of their love for each other, the sense of helplessness she experienced at the time of his diagnosis, and her growing strength as she comes to realize that there is much she can do to improve the quality of his life. Understanding pain, pain management, and symptom control is detailed throughout, and insights into chemotherapy, palliative care and the benefits of dying at home are explored. This book provides hope and strength for mesothelioma patients and their families.

To purchase a copy of the Lean on Me book for Mesothelioma patients and their families, please visit the Lean on Me Book Site site for details.

Association of Cancer Online Resources (ACOR) (http://www.acor.org/)
Here you'll find online discussions for people with a variety of diseases, including mesothelioma. Also, news updates regarding cancer.

Cancer Answers (http://www.moffitt.org/Site.aspx?spid=954194E5962E47C7AA26AEE2607C90E3)
Cancer Answers at the H. Lee Moffitt Cancer Center & Research Institute is a national toll-free cancer information service staffed by registered nurses. Cancer Answers staff assist callers, throughout the United States with answers to their questions and current information related to cancer research, treatment, and community resources. Call (800) 456-7121.

Cancer Care, Inc. (http://www.cancercare.org/)
Offers online social workers to answer questions and provide guidance, educational materials, telephone support groups, and direct support to people in New York, New Jersey, and Connecticut.

Cancer Hope Network (http://www.cancerhopenetwork.org/)
A non-profit organization that provides free and confidential one-on-one support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.

drkoop.com (http://www.drkoop.com/)
This site is a rich source for health information, offering articles and advice on a wide range of medical topics including cancer. Additionally, drkoop.com, includes personalized medical news, an index of health sites on the Web, "Health and Wellness" centers, an interactive pharmacy, an "Ask Dr. Koop" message board, and information about malignant mesothelioma.

Mesothelioma Support and Information
Provides information and news on mesothelioma and asbesto-caused lung cancer. Covers all of the main subjects of interest on this deadly cancer.

Patient Advocate Foundation (http://www.patientadvocate.org/)
Provides education, legal counseling, and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination and debt crisis matters. They have national and state-by-state listings for help with housing, utilities, transportation to medical treatment, pharmaceutical agents, home health care, and more.

Rare Cancer Alliance - Visit their Cancer Support Forums
A community of caring volunteers. Our primary purpose is to disseminate information and provide support to all pediatric (childhood) and adult rare cancer patients. Our support members are patients or survivors, not medical professionals. We are people who have had to go through the process of wading through information (or lack of it) on the internet for our own cancer. We hope that the sections of our website save you precious time and energy.

National Cancer Institute (NCI)
Building 31
Room 10A03
31 Center Dr., MSC 2580
Bethesda, MD 20892-2580
Phone: (301) 435-3848
Toll-free: (800) 422-6237
http://www.nci.nih.gov/

American Cancer Society (ACS)
1599 Clifton Rd., NE
Atlanta, GA 30329-4251
Toll-free: (800) 227-2345
http://www.cancer.org/

American Lung Association
1740 Broadway
New York, NY 10019
Phone: (212) 315-8700
Toll-free: (800) 586-4872
E-Mail: info@lungusa.org
http://www.lungusa.org/

National Heart, Lung and Blood Institute (NHLBI)
6701 Rockledge Dr.
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: (301) 592-8573
E-Mail: NHLBIinfo@rover.nhlbi.nih.gov
http://www.nhlbi.nih.gov/

National Institute for Occupational Safety and Health
4676 Columbia Parkway, Mail Stop C-18
Cincinnati, OH 45226
Toll-free: (800) 356-4674
Fax: (513) 533-8573
http://www.cdc.gov/niosh

National Cancer Institute
The National Cancer Institute's (NCI) PDQ clinical trials search form and other information about clinical trials can be found at http://www.cancer.gov/clinicaltrials/search.

You can choose "mesothelioma" under the scroll down window for "disease type" to learn about mesothelioma-specific trials listed with the NCI.

Commercial Clinical Trials Finders
As with the other commercial Web sites listed below, the content will include NCI-sponsored and some pharmaceutical company clinical trials. The content of these commercial trial finder sites is likely to depend upon fees the trial finder companies charge the pharmaceutical companies for listing the pharmaceutical company trials, and none of those listings are completely comprehensive.

Some of these Web sites require personal information for use of their services. Before providing personal information, we encourage you to read their Privacy and Terms of Use statements.

Centerwatch (http://www.CenterWatch.com/)
Veritas Medicine (http://www.veritasmedicine.com/)
Government Clinical Trials: http://clinicaltrials.gov/ct/gui/c/a1b/screen/SimpleSearch
http://www.cancer.gov/clinicaltrials/search